Tuesday, August 26, 2008

Eulogy for Harry

Eulogy for Hendrik Thomas Neudoerffer Venema -- Harry
St. Mary's Road United Church, 10 August 2008

(Cynthia and Henry Neudoerffer Venema)


Cynthia: Harry’s story could be told many ways. The story we choose to tell is one of hope, transformation, and transcendence. A quote that I love tells us that we are not humans having a soulful experience in this life, rather we are souls having a human experience. Henry and I believe that all souls come from God for a particular human experience. Harry was sent from God to be a teacher and a healer and in his short life Harry taught us a lifetime’s worth about joy, happiness, courage, strength, and love. He taught us about living in pure joy in every moment of life, no matter what you are facing. He taught us the true meaning of strength and courage. He taught us about the unbounded nature of pure love.

There are two parts to Harry’s life. The first part of his life is a dream of hope – our hope for him in this world, our unrelenting love for him - the dream of watching him grow up.
Harry’s gifts to me began with his birth. Start to finish from the time my water broke, prophetically at about 9:00 pm on April 3rd, Harry’s birth took no more than four hours. I won’t say it was painless, but it was entirely manageable and exactly the birth experience I had hoped and prayed for.

Harry had many nicknames: “huggy pet,” “hugs-bugs,” “hares,” “hares-bears,” “boinga,” “love-bug”... He liked them all. Harry was quite simply a perfect baby. He was always smiling and happy – he was our Happy Harry. He hardly ever cried and was content just watching the world perched in the crook of his Daddy’s arm. Many of my friends would comment that they would have a third child in an instant if they could guarantee that they would have one like Harry.

Lydia adored her little brother; although she is more than three years older than Harry, she loved playing and cuddling with him and was oddly covetous of his trucks.

Henry: The second part of Harry’s life is also a dream of hope. His unrelenting love for us, his joy and courage and how this transformed our family and so many others who accompanied us on this journey. In late February, Harry was hospitalized with what turned out to be an extremely rare and aggressive Stage 4 cancer of the liver. There was some concern that he would live through the first weekend in hospital, the first round of chemotherapy, and would ever come home. He lived another 5 and a half months and came very close to becoming the first child in the world to ever beat this disease back from a stage 4 diagnosis. Harry had enough time to transform us and so many around us.

There are many words one could use to describe this phase of Harry’s journey – we chose the word exhilarating. The spontaneous outpouring of love and support from our family, friends and colleagues was overwhelming – that was Harry’s doing, his ever buoyant courage and optimism moved people - even people who didn’t know him but could see the infinite love of God in his eyes in the photos on the website so patiently and artfully maintained by his Auntie Kathleen and Uncle Gareth.

Words, meals, information, support, hope always arrived exactly when we needed it, we were held in the arms of a community that bonded around Harry and for that we are eternally and profoundly grateful.

Harry never cried or complained – only when he bumped his head or Mommy or Daddy was out of sight for a split second. Cynthia and I would alternate nights while Harry was hospitalized: you never got much sleep crammed into those narrow pull-out beds in the hospital, but it was easier to be with him there than at home. The closer you were to him, the better he made you feel. Harry’s courage was infectious: he pulled us through all the hard times. I remember saying many times that it was easy to stay so optimistic with Harry in charge; what a brilliant leader he was.

Harry slept through the first round of chemo, laughed through round 2, and danced and bounced through rounds 3 and 4. He learned to walk through rounds 5 and 6, pushing a favorite cart in a loop around the pediatric oncology ward at Children’s Hospital, while we raced to keep up pulling his IV pole – although he never quite gained the full confidence to let go of our hands.

He came home in late March after over 5 weeks straight in hospital, in time to celebrate his first birthday, and then his mommy's and his daddy’s birthdays. He watched many of big sister Lydia’s soccer games, and got to go with her to the wading pool. He loved playing at the Wolseley School playground on the swings and slides. He enjoyed his life and lived it richly, communicating with us through baby signs – "please," "thank you," "bye-bye," "milk," "more," and "where is" -- giving us all kisses, pushing his cars and trucks around, reveling in the sights and sounds of the neighbourhood, the kids, the buses, the playgrounds, the friends constantly dropping by.



We are stunned by the events of these past five and a half months; it’s very difficult to make sense of such an exceedingly rare and deadly disease until you realize that this radiant little angel came into our life to show us how to live.

Today we celebrate the life of our dear, sweet Prince Harry the Handsome. We promise to always honour Harry’s life by living as he taught us, full of hope, living in joy and happiness in each moment. Bless your children -- love them -- exhilarate knowing they love you. Love never, ever dies; Love is endless. God is Love.

Good night sweet Prince. Mommy loves you. Daddy loves you. Lyddie loves you. All your people love you. God loves you.

*********************************

Tribute to Harry’s family

(Kathleen Venema)

After the last intense five and a half months, it didn’t seem right to let this afternoon go by without a short tribute to Harry’s parents and his sister. I’m Harry’s Auntie Kathleen, and I’ve known Harry’s father Henry all of Henry’s life and almost all of mine. I was just a little older than Lydia is now when Henry was born and once I got over being annoyed that I wasn’t the baby anymore, I really got to like him quite a lot. I was, to tell the truth, fascinated by him, and I pestered my mother with questions about him from the moment she arrived home from the hospital:

“Mummy,” I’d ask, “what will the baby look like when he learns to walk? What will he look like when he learns to talk?” “What will the baby look like when he’s one?” “What will he look like when he goes to school?” And, “Mummy,” I asked once, astonished at the possibility, “what will the baby look like when he’s twenty?”

Twenty was as far as my little pre-school imagination could travel and I’m grateful for that now: it would have been grievous to have known already then to ask, “What will he look like when his own baby is desperately ill?”

I didn’t meet Harry’s mother Cynthia until much later. I didn’t meet Cynthia until twelve years ago, when she joined the women’s group that I belonged to at the University of Waterloo, but I was equally fascinated with Cynthia because on the afternoon that we met, Cynthia provided me with the single instance I’ve ever had of psychic match-making. It took me just thirty minutes that afternoon to realize that Cynthia was not just the kind of woman my brother should marry, Cynthia was the woman my brother should marry. Among all the reasons I could and couldn’t have put into words that afternoon, I knew that Henry and Cynthia should be together because Henry would need to learn the strength Cynthia had been honing already for years, the strength to walk life’s most harrowing paths holding fast and holding gently to the ones she loves. And Cynthia, it turned out, would need to learn the great, immeasurable, matchless love of the remarkable father that Henry has shown himself to be.

Since the moment Harry’s illness was first diagnosed, Cynthia and Henry and Lydia and Harry have modeled for all of us what it looks like to walk into the future with unbounded courage and unabashed love, holding tightly to one another’s hands, eyes wide open, and, what’s much harder, hearts wide open, as wide open as any of us could hope to be, to mysteries and miracles vaster than our best imaginations.

Henry and Cynthia’s capacity for love and hope, for patience and endurance, for celebration and laughter, for keeping Lydia safe and secure and full of play but not sheltered from the fact of Harry’s illness – that capacity has stretched open all our hearts and our imaginations, has helped us remember and muse and act on the potential for transformation in each of our own lives. Harry arrived among us already dazzled with joy, and in every moment of his living, he reflected back the spacious, capacious, unbounded love in which his family held him. For every moment of the sixteen months he spent with us, Cynthia and Henry and Lydia matched Harry’s courage in equal measure, and because they could and because they did, he was able, when he needed to, to “walk on,” to what some of us call “heaven” and what Lydia simply calls, “the next place.”

To walk on ourselves, we search for and nourish various forms of consolation. Among the consolations I treasure is the conviction that in the “next place,” Harry is driving the transit buses of heaven, Harry’s driving Route 10 in heaven, Harry’s driving with his trademark grin and his thousand-watt smile, and people who had no idea where they were before he arrived are turning to one another with relief and saying,

“Oh I get it now: we’re in heaven!”

Over the last five and a half months, in what we sometimes think of as a blindly materialistic, coldly computerized, friendless, frightening, and fragmented world, Cynthia and Henry and Lydia and Harry have received support from friends and family, colleagues and neighbours, strangers, weavers, doctors, and bakers, list-makers, note-takers, and play-daters, healers, singers, drummers, pray-ers, and many, many others …

They’ve received more support than any of us could have guessed or hoped for, and everyone here is part of that unpredictable and immeasurable circle, choir, and orchestra of love. In the days and weeks and months and years that follow this one, Cynthia and Henry and Lydia will continue to need what you’ve shown are the unfathomable depths of your support, and I thank you in advance, because I know they will find everything that will be necessary.

Wednesday, August 20, 2008

Aubrey Park, Sunday, 10 August 2008

Gathering at Aubrey Park on a perfect summer day ...

Order of Service, 10 am Sunday, August 10, 2008.

Welcome (Henry and Cynthia): Thank you for joining us in the celebrations of Harry’s life. We’re honoured to have you here sharing this time and this special place. Harry loved to play here, particularly the swings over there, where we could also enjoy watching the buses turn around.

Opening Prayer: Thanks to the Creator for bringing us all together on this beautiful morning. Thanks to the Creator for the community of support that has sustained our family through this journey with Harry. We ask for guidance and inspiration as we celebrate Harry’s life and mark his cremation this morning at 10.30.

Singing: “Oh the Lord is Good to Me”
Cynthia: "Nothing Gold Can Stay"
Henry: Susan Virginia Hall poem
Music: Gary and Jim
Toni: Story of Prince Harry
Henry: Message from Claude
Cynthia: "Do Not Stand At My Grave and Weep"
Free time for sharing of readings and stories
Candle lighting and bubble blowing
Music: Judith, Simon and Sara
Words to mark Harry’s cremation



Rejoice over everything.
Exult. Exhilarate.
Be glad. Be delighted, elated,
And bowled over with joy!
Frolic freely, hop, hope,
Dance on the dare, cheer,
Champion the little ones.
Revel in the riotous light.
Invoke God without ceasing.
Pray with passion.
Whatever you do,
Do not quench the Spirit.
Take care not to douse
Or dampen the bold blaze
In your depths.
Jump into life.
Hold fast to it.
Give thanks for everything.
For everything,
Even the most misshapen and misunderstood,
Is the disguise of the divine.

- Susan Virginia Hall

Toni's story of Prince Harry

Candle lighting


Lydia and friends on their way to the play structure

Words to mark Harry's cremation ...

All is Well
- Henry Scott-Holland (Canon of England)

Death is nothing at all.
I have only slipped away into the next room.
I am I, and you are you.
Whatever we were to each other, that we still are.
Call me by my old familiar name,
Speak to me in the easy way which you always used.
Put no difference in your tone,
Wear no forced air of solemnity or sorrow.
Laugh as we always laughed at the little jokes we enjoyed together.
Play, smile, think of me, pray for me.
Let my name be ever the household word that it always was.
Let it be spoken without affect,
without the trace of a shadow on it.
Life means all that it ever meant.
It is the same as it ever was.
There is absolutely unbroken continuity.
Why should I be out of mind because I am out of sight?
I am waiting for you,
for an interval,
somewhere very near,
just around the corner.
All is well.

Into your hands O God, beloved Creator of all,
We commend our dear Harry.
And we commit his body to be consumed by fire,
Earth to earth, ashes to ashes, dust to dust.
God bless him and keep him and give him everlasting peace.
Amen.

Wednesday, August 13, 2008

Some of Harry's extended family

Cynthia's Uncle Ernie and her cousin Mike arrived just in time to join us on Sunday morning. Also pictured here with Cynthia and Henry are Harry's Oma, Norma Neudoerffer from Guelph, Auntie Cecelia from Warsaw, and Auntie Sarah and cousin Roland from Paris.

Roland, Auntie Sarah, Oma Norma, and Auntie Cecelia

Harry's Beppe and Pake, Grace and Dave Venema, with Auntie Kathleen

Harry's Uncle Gary, cousin Gwyneth, Auntie Sandy, and Beppe

Harry's cousins, Judith and Simon and Matthew and Sara

Sara and Simon and Judith also provided music at the playground. Simon and Sara's dad is Harry's Uncle Gareth, who, unfortunately, isn't in any of the pictures because he was busy taking them.

Celebrating Harry's life, 10 August 2008

Dear friends and family,

Over the next little while, we'll be posting pictures and stories and poems and prayers and tributes from the two celebrations that marked our beloved Harry's life. Both celebrations were held on Sunday, August 10th. The first one marked Harry's cremation and began at 10 am at Aubrey Park playground, just a few blocks from Harry's home and a place he loved to play ...

On the way to Aubrey Park ...

Aubrey Park was especially appealing to Harry because it's right next to the loop where the #10 Wolseley bus turns around. That meant that Harry could play on the swings and in the grass and revel in the sight of buses waiting to leave at their scheduled times ...


Harry's love of buses began when he'd wait at the front window with Mummy and Lydia at the end of the day, watching for Daddy to get off the bus. It grew from there to an intense and infectious delight any time he'd catch sight of a bus on the Wolseley route.

When Uncle Gareth told Harry's story to the lovely people at Winnipeg Transit, they put their heads together and took just three hours to produce the authentic and personalized bus stop sign that Henry and Cynthia and Lydia are holding in this picture. The sign has all the components of a regular bus stop: a name right at the top, in this case, "Harry's Stop," and in the bottom left hand corner, where you'd otherwise find the number to call to determine when the next bus will arrive, the Winnipeg Transit folks have inserted Harry's own arrival time, April 4/07.

Henry and Cynthia are deeply appreciative of the wonderful reminder this sign will be, of Harry's undiminished joy each time he saw the bus.



More than a hundred friends and neighbours and family members (some who'd arrived in Winnipeg just in time) joined us for the celebration itself. Among other moments:

Mariah smudging ...

Geir and Jim playing and singing while the youngsters blow bubbles.



Friday, August 8, 2008

Preparing for Sunday's service of celebration

Dear family and friends,

Apparently very little can be done to keep the sanctuary at St. Mary's Road United Church cool, so please dress for very warm conditions. You may want to bring some water to stay hydrated.

There will be pictures of Harry on display in the foyer of the church, and, because a number of people have asked, we'll also have information explaining how you can order a permanent photo of Harry if you would like to do so.

Information about parking and bringing food to the church appears in a previous post.

With continuing gratitude for your support and the many ways in which it's being shown,

Thursday, August 7, 2008

The Harry Venema Memorial Fun Fund

Dear family and friends,

In lieu of flowers, please consider making a contribution to the "Harry Venema Memorial Fun Fund," which will support children's sports activities at the Robert H. Steen Community Centre (just down at the end of Henry & Cynthia's street), a place Harry loved and where he made many, many friends.

Please make cheques payable to "Harry Venema Memorial Fun Fund," 21 Glenview Avenue, Winnipeg, Manitoba, R2M 1W3.

Food and parking for Harry's service on Sunday

Dear family and friends,

Many of you have been asking how you can help as Cynthia and Henry and Lydia prepare for Sunday's celebration of Harry's life. We'd like to serve a light buffet lunch after the service and if you could contribute food for that (fruit and vegetable trays, sandwiches, cold cuts, cheese, buns, dainties), it would be very much appreciated.

People from St. Mary's Road United Church (613 St. Mary's Road) will be available to take in and organize the food by 1 pm on Sunday. Deliveries can be made to the St. Anne's Road entrance of the church (there's a sign for the Montessori school on that side), or (if you know where to go) to the kitchen entrance off the back lane that runs off Mager Drive E.

Unfortunately, parking is not available on St. Mary's Road due to ongoing construction.

Parking is available on both sides of St. Anne's Road, as well as on nearby side streets. Note that if you intend to park on side streets between St. Anne's and St. Mary's, it is advisable to enter the street from St. Anne's Road.

Parking is also available:

a. behind the civic buildings on the west side of St. Mary's Road (this is a fairly large lot)
b. along Mager Drive West
c. in the insurance office parking lot at the junction of St. Anne's and St. Mary's
d. in the Global TV parking lot, which is closest to the church (this parking should probably be reserved for anyone with mobility issues)

Thank you all so much,

Tuesday, August 5, 2008

Harry's obituary


Harry (Hendrik Thomas) Neudoerffer Venema
4 April 2007 – 3 August 2008

After a valiant journey, our beloved Prince Harry passed on peacefully and quickly in the evening of August 3rd. He was surrounded by the love of family and friends in every moment of his life and in every moment of his passing.

Harry was a young boy and a dazzling spirit who loved the Wolseley neighbourhood and the activities at the Robert A. Steen Community Centre. He loved the #10 bus and he delighted in watching the kids at Laura Secord School. He loved Family Fun Night at the community centre and made many friends there. He enjoyed watching his big sister Lydia at dance class and soccer; he played in the wading pool, and thoroughly enjoyed the annual soccer Jamboree, especially the bouncy castle.

Harry loved the Laura Secord and Aubrey Street playgrounds and was an avid Kindermusik participant. He approached each day with a sense of joy, love, courage, and accomplishment. He touched us deeply with the wisdom of his soul, and his powerful courage drew us forward with him into a future full of hope. His struggle with illness brought many people in the community together, forging lasting bonds of love.

Harry will be held forever in the hearts of his parents, Cynthia and Henry, his big sister Lydia, his grandparents Norma Neudoerffer and Grace and Dave Venema, his aunts Cecelia (Jan), Sarah (Christophe), Alexandra (Gary), and Kathleen (Gareth), and by his cousins Stas, Thomas, Sophie, Luisa, Roland, Gwyneth, Simon (Judith), and Sara (Matt), as well as by all the members of his large, extended family, and innumerable friends around the world.

His family would like to thank all the many healers who accompanied Harry on his journey.

In lieu of flowers, a fund in Harry’s name is being set up to support youth sports activities at the Robert A. Steen Community Centre. Please check for details at hendriksjourney.blogspot.com.

A celebratory gathering marking Harry’s cremation will be held at Aubrey Park playground (Aubrey Street south of Wolseley Avenue) at 10 am on Sunday August 10th. A celebration of Harry’s life will then be held at St. Mary’s Road United Church (613 St. Mary’s Road) at 3 pm on Sunday August 10th. Everyone is welcome to join us at both celebrations.

Arrangements by Seasons Funeral Service, 444-5444.

Just for today, I will not get angry
Just for today, I will not worry
Just for today, I will be grateful to my neighbor and every living thing
Just for today, I will work hard
Just for today, I will be kind to others

-The Reiki Principles

Monday, August 4, 2008

Harry (Hendrik Thomas) Neudoerffer Venema (4 April 2007 - 3 August 2008)

After a courageous struggle, our Prince Harry passed away at home peacefully and quickly at 9 pm Sunday night. He was surrounded by family and friends and was loved every moment. A memorial service is being planned for later this week. Details will follow.

In lieu of flowers, please consider supporting a memorial fund which we're in the process of setting up. Details on that will also follow.

Cynthia, Henry, and Lydia

Friday, August 1, 2008

Look for a new post on August 12th

Dear Friends and Family,

This is just to let you know that we will be away from Winnipeg and computers for the next while, returning on the evening of Aug 11. Our next post will likely be on Aug 12, after we've checked in with Cynthia and Henry.

Cynthia and Henry are looking forward to the arrival Saturday morning of a good friend from Ontario (you've no doubt read JRechsteiner's comments here in the blog) who is staying until next week, and Cynthia's mother is coming on Thursday (Aug 7), and staying for an extended visit.

Harry is continuing on the naturopathic treatment plan that's been developed for him, and Henry and Cynthia are thankful for all prayers and expressions of hope directed their way. Just this evening Henry spoke of the extended "orchestra of love" surrounding Harry.

Take good care of yourselves and each other,