We arrived at Harry's peaceful room this evening to find our friend Mariah, wrapped in a prayer shawl and providing Reiki therapy to the beautiful little boy. Harry was calm and seemed utterly engaged in the cycle of loving energy flowing through him. He has had a very good day, hasn't needed morphine since the morning, and has remained comfortable throughout. Recent test results indicate that his kidneys and his heart are strong and functioning well. We're still waiting for the biopsy results, hopefully completed soon by the top researchers in the field at Baylor University in Texas. One of our friends, whose child has undergone many tests, has written recently remembering that a nurse once told her that when test results take longer than expected, it's sometimes because the doctors are checking to ascertain the absence of something, not the presence of something. And that offers us all a little comfort while we wait for the report that will enable treatment to commence.
Henry hasn't yet had a chance to write his own message but he specifically asked us to convey his and Cynthia's heartfelt thanks for the outpouring of love and help and support (prayers and meditations, food and flowers, play dates for Lydia, all forms and expressions of love, and a freezer!) that you've been sending since Harry was first diagnosed. He asked us to be sure to describe how powerfully two prayer shawls, sent from Trinity United and St. George's Anglican, have added to their sense that they and Harry and Lydia are held in arms that promise hope and healing. Be well everyone, have a peaceful, restful night.
1 comment:
Dearest Cynthia, Henry, Harry and Lydia,
I know the waiting for results is absolutely nerve-wracking. I hope the nurse's recollection about waiting is of some comfort to you while you anticipate what may lie ahead. While it is unfathomable that Harry may have to endure difficult treatment, as well as the rest of you, his unique illness puts him in a situtation where he is an individual, where every change will be considered, and where he has excellent specialists from around the world monitoring and healing him. Of couse, Children's Hospital is absolutely amazing in treating all kids like they are unique and special.
You are all so loved, as witnessed by the binders of messages, food deliveries, etc. I just wanted to add that the physician who informed you of Harry's tumour is someone I know. He was so struck by Harry's charm and how wonderful your family is. You may think 'you doing what you have to do' yet what you are doing, and how you are doing it takes amazing strength. We offer our healing wishes, our love, and whatever else it may take (even if that means silence and some distance) to help you get through this.
Love Monica, Stephen, Maggie, and Owen)
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